As many of you know, I am a mom of 3: 2 of which are literally one in a million. We have been blessed with 2 very special kids, with extraordinary needs. And one, who is completely, luxuriously “normal”.
- Noemi– 8 mos. No issues, thank you Jesus.
- Rio– 4 years old, Microphalmia, Cranio-facial Midline Clefting,
- Vivia– 7 years old, Juvenile Dermatomyositis, severe food allergies
Having children with extraordinary circumstances leads to living extraordinary lives, and ultimately having extraordinary kids! But getting there is a daily challenge!
In having counseled/mentored girls and women for the past 15 years, my natural inclination (after getting a “handle” on Our New Normals) became to help others through similar situations to that which my family has gone through. I have something you may need, and you have something I may need. It takes a village! And with children with RARE diseases, and conditions, those tribes are formed on the WORLD WIDE WEB.
If you find yourself here, it is because you yourself are the parent of a child with special needs, or you are a friend / family member who happened upon this by invitation to stand with someone you love- either way, my wish is that you will gain loads and loads from these posts. Understanding, being one of them. These principles can be applied to ANY hard, traumatic life surprise that you may be facing, or recently discovered.
I am so excited to share 40 days with you.
Let’s enter in to this journey together, and see what God will do!
I have no idea what it will look like for you, that is between you and God, but I hope you’ll share in the comments section, and respond and interact.
That is my wish. That we will all be encouraged by each other during this time. And see mighty acts of God’s hand – being moved by our faith, for each of our unique situations.
Love to you all.
Read more about the 40 days, and where/how to start HERE.